Tag Archives: Life With Arachnoiditis

Art Every Day Month~Day 16 ~ Adaptability

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Studio space was getting crowded. Repurposed the old twin bed frame into this All New Bench for my Ostrich Cot!

For those who haven’t seen it before, it used to be on the floor, then on a twin bed frame if I wasn’t using it outside. The twin bed frame had some broken places so can’t ever be used for a bed again. This week I decided to chop it up and save some floor space. Now the cot is actually at the perfect height for me to get up and down with ease. I also bolted it to the top of the bench so it can’t tip if I lose my balance on the way. Woohoo!

This project brought to you by ~ Mid-November and temps in the 60s!

 

Related Links:

Rehabilitation and Recovery 

History of the Ostrich Cot at SheilaLynnK Art Studio 

The Rest of the Art Every Day Month Series of Posts are  Here 

NOTES FROM AEDM 2015 DAY 1

I have decided to participate in Leah Piken Kolidas’ Art Every Day Month Challenge atCreative Every Day during the Month of November. For the first time, as I do this 30 day challenge, I will be posting my progress HERE for arachnoiditis survivors and advocates.

I hope you will join me for this creative journey. If you are an Arachnoiditis Survivor creating any art during the series that you would like to share with The Art For Arachnoiditis Project feel free to do so in the Art For Arachnoiditis Project Facebook page, share links in the comments below, or submit the work for use in YEAR 2 of the Survivors’ Art Exhibit. (Accepting Entries until Feb 15, 2016.) Although the Art By Survivors’ exhibit is open only to the Survivors; other creative minded individuals are invited to share in all of the other places.

SUBSCRIBE to get the quarterly Art For Arachnoiditis Project Newsletter

WATCH VIDEO FROM OUR 2015 SURVIVORS’ ART EXHIBIT HERE

SHOP Awareness Art,Your purchase will benefit the Art For Arachnoiditis Projects at the studio. These fair market prices are not tax-deductible purchases.or Make a tax-deductible contribution via our Fiscal Sponsor,  NYFA [New York Foundation for the Arts] Or by check payable to the New York Foundation for the Arts, Memo: The Art For Arachnoiditis Project mailed to: SheilaLynnK Art Studio, 345 South Main Street, Wellsville, NY 14895.

To submit original art to this catalog to benefit the Art For Arachnoiditis Project Awareness Efforts. Send submissions with your signed Art In-Kind Form to sheilalynnk@yahoo.com subject line: Add My Art

This is the first time I will be doing daily art for The Art For Arachnoiditis Project. If you have never seen these posts before; you can get a better idea of what this is all about by checking out a A Few of my Similar Month-long Projects/Posts/Series from the Past.

My 30.30.30 [30 Days, 30 Pieces/posts, 30 minutes each] activities have previously been posted on my blog and on my facebook page. The most recent one I did in September 2015 is available HERE, April 2015 started HERE: 
 
April 2014 I alternated between painting and drawing HERE andHERE
January 2014 ~ 30 Day Art Journal Project HERE
September 2013 was a daily Mandala Project (which grew and ended up in my 2013 Show, “A Round Now In A Square Time” with artist & friend, Allison Midgley) That project startsHERE
The Show is HERE
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About Square Time

Time stands still as it passes us by
parallel lives
wondering why
wait and watch
get to know
rehabilitation moves so slow
sweating, shaking, holding time
in trembling hands
pages align
unglued
the muse
falters and flashes
adhesion brings ashes
stifles the spark
breathe
glow
struggle to know
adjusting the pace
wasn’t a waste
resigned, refined
a new design
today, tomorrow
tainted with sorrow
blessed by hope
alive!
~slk–

As I assembled the work for A Round Now In A Square Time I was forced to revisit the phases and stages of my own physical rehabilitation. The internet has the power to be an incredible rehabilation tool for conditions which leave the patient isolated from society. Parallel lives meet in the support groups there. They share resources and frustrations. They grieve in empathy for the time that was and the now that is. Together they inspire enough hope for tomorrow because there is strength in numbers. The internet links us to the outside world while we virtually live within the confines of adhesive arachnoiditis. Until we adapt and find a way to live independently in real time we are forced to survive vicariously and at the mercy of the people around us.
Active members of Life With Arachnoiditsand Arachnoiditis Society For Awareness and Prevention kept me in touch with virtual humanity while I was re-defining my physical presence in the world.Image