Monthly Archives: December 2015

THANK YOU! 2015 in review

2015 Year In Review Map
Providing Healing Support for Survivors

Thank you for your support this year!

Fiscally sponsored by the New York Foundation for the Arts, The Art For Arachnoiditis Project is working to Empower Spinal Arachnoiditis Survivors via participation in the Arts. This website is dedicated to providing healing support to fellow Survivors.

With your help this project becomes a valuable resource to Arachnoiditis Survivors around the world…93 Countries! We couldn’t do it without you.

FUND YEAR 2 ~ It’s tax deductible AT
NYFA [The New York Foundation For the Arts].Or by check payable to the New York Foundation for the Arts, Memo: The Art For Arachnoiditis Project mailed to: SheilaLynnK Art Studio, 345 South Main Street, Wellsville, NY 14895.

Contributions of $2500 or more must be accompanied by a Contribution Letter

The WordPress.com stats helper monkeys prepared a 2015 annual report for artforarachnoiditis.org. Check it out to see how we’ve been doing!

Here’s an excerpt:

A New York City subway train holds 1,200 people. This blog was viewed about 4,900 times in 2015. If it were a NYC subway train, it would take about 4 trips to carry that many people.

Click here to see the complete report.

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Independent Publications by Survivors

Cover Image for Still Standing Sometimes (Part 1)
Cover Image for Still Standing Sometimes (Part 1)

ISBNs Needed!

I have finished the written aspect of this publication.

Introduction excerpt:

“Hearing of many more cases of uncompensated Arachnoiditis while struggling both physically and financially, as well as, in numerous other aspects of my life; in the end, I felt compelled to present this case to the Appellate Division of the New York State Supreme Court….The details of that pro se appeal follow.” ~slk

When I reach the $200 per release mark on my Patreon Page and/or Pending adequate funding, I will purchase an ISBN for this publication so that it can become an affordable resource for Arachnoiditis Survivors working toward accountability for this preventable medical injury. This publication will be free to all who subscribe to the Art For Arachnoiditis Project Newsletter.  Proceeds from any purchase of the publication will be invested in the project.

The Art For Arachnoiditis Project YEAR 2 Budget includes ISBNs for this and other Independent Publication for and by other Arachnoiditis Survivors. We can get 10 ISBNs for $295. Tax-Deductible Contributions made via my fiscal sponsor, The New York Foundation for the Arts, also Support the purchase of ISBNs for Survivor Publication.

Still Standing, Sometimes Part 2: Survivors’ Stories from the Art For Arachnoiditis Project will be Sheila’s Adaptability and Survivor story into Creative Wellness with a collection of all of the stories entered in Year 1 of the Art For Arachnoiditis Project.

Still Standing, Sometimes Part 3: Survivors’ Stories from the Art For Arachnoiditis Project will be a collection of all of the stories entered in Year 2 of the Art For Arachnoiditis Project.

The Survivors’ Exhibit is an art book for the coffee table featuring a collection of all works displayed at the project exhibits during Year 1  of the project.

Survivors Exhibit Art book In progress
Survivors’ Exhibit Art Book ON SALE NOW

SUBSCRIBE TO RECEIVE PROJECT NEWS AND BUDGET UPDATES IN YOUR EMAIL

ALSO STILL IN THE WORKS

Creative Pain Managment
Activity Book {PREVIEW and BUY IT NOW}

Thanks to patrons on my Patreon Page ; we have reached the $50 per release goal which allows me to purchase an ISBN for this Publication. (updated April 25, 2015)

The Creative Pain Management Assessment and Activity Book is NOW Available for purchase for ONLY $15. 

When I get to $400 per Release at Patreon, I will order FIFTY copies of the Creative Pain Management Assessment & Activity Book  for Arachnoiditis Survivors. These copies will be sold to interested Arachnoiditis Survivors registered at the Art For Arachnoiditis Project at the Survivors’ Rate of  ONLY $5.00 (to cover shipping expenses).

I will purchase an ISBN for this publication so that it can become an affordable art & coping tool for Arachnoiditis Survivors Registered at the Art For Arachnoiditis Project and affordable for others living with Chronic Pain.

FUND YEAR 2 ~ It’s tax deductible AT
NYFA [The New York Foundation For the Arts].Or by check payable to the New York Foundation for the Arts, Memo: The Art For Arachnoiditis Project mailed to: SheilaLynnK Art Studio, 345 South Main Street, Wellsville, NY 14895.

Contributions of $2500 or more must be accompanied by a Contribution Letter

At the request of members of the Arachnoiditis Survivor Community; the on-line payment option to support the Art For Arachnoiditis Project as a gift purchase to them is now available.

100% of the gift amount is contributed to the Art For Arachnoiditis Project in honor of the intestinal fortitude of the Arachnoiditis Survivor.

Gifts Purchased in the Art For Arachnoiditis Project SHOP also help support these Independent Publications and other aspects of the project. These fair market and below prices are not tax-deductible purchases.

These works are made possible with support from people like you.

Thank you.

Go-to-Gurus

Last Blooms from 2015 ~photo
“Last Blooms of the Season” found under the large pine tree outside of the studio a few days after the first snow.

Sometimes, quietly sheltered  knowledge blooms in the strangest and most unexpected places at the best possible moment.

On the Arachnoidits Journey, as in the Journey of Life itself; there are many questions we have that cannot be answered or resolved by the practices of “modern” medicine.  I attempt to keep open eyes, ears, and mind for rumblings of sound guidance from many assorted sources.

(DISCLAIMER: I am in no way affiliated with the marketing or compensation received by these individuals. I am in no way “professionally” qualified (read “certified”) to assess the value or merit of the information or references provided by them. I am sharing this information as an experienced patient who has found some comfort in the knowledge shared by these people willing to share the insights they have collected along the way. What you do with this information is done at your own discretion under the influence of your own ability to weigh the benefit/risk value of the written word.)

My list of Go-To-Gurus

Anne Morrow Lindbergh, Author, Gift From the Sea

Alan Alda, Author, If I Understood You, Would I Have This Look on My Face? Adventures in the Art and Science of Relating and Comminicating

Dina Falconi, Author and Wendy Hollender, Artist of Foraging & Feasting; A Field Guide and Wild Food Cookbook 

Katrina Blair ~ at Turtle Lake Refuge, Author of The Wild Wisdom of Weeds; 13 Essential Plants for Human Survival, A forager’s guide to ultimate food security, including 100 nutrient-dense recipes for food, medicine, and self-care. 

John S. Workman ~Author of Fireflies In A Fruit Jar: On Religion, Politics, and Other Wonders by a Southern Preacher-Turned-Journalist

Norman Cousins ~Anatomy of An Illness on combating life-threatening illness through humor and patient participation in care.

Vanessa Couto ~ Liminal Astrology  weaving elements from archetypal astrology, depth psychology, storytelling, dreamwork and art in her coaching and mentoring approach, she helps broaden the understanding of  life’s stories, and view the path ahead with more clarity and confidence.

Sarah Love ~ I Stand For Love  IS A MOVEMENT THAT CULTIVATES AND CELEBRATES LOVE WARRIORS AROUND THE WORLD just like YOU.

Susan Jenkins~Shamanic Healing  ~bringing over 30 years of experience to her practice as a shamanic healer.

Anne Haymen~Sharing practical methods of Bringing Ancient Wisdom into our modern lives. 

Jennifer  One In Yoga ~especially this Gentle Guided Grounding Yoga activity

Lisa Sonora ~ An Artist sharing Inspiration + Practical ideas for living more creatively, courageously, consciously.

Leah Piken Kolidas ~ Creative Every Day  “to share my artwork, thoughts on living a creative life, and what is inspiring me (so much!).” ~lpk

Susun Weed~ Natural Health, Herbal Medicine and Spirit Healing the Wise Woman Way  Her Bio

The Mandala Lady ~Maureen Frank offering “mandala art to provide the inspiration, guidance, and peace you seek along your journey of Self discovery.”

Jennifer Lee ~ at Artizen Coaching  and her Right Brain Business Plan  help me find creative ways to work at home.

Werner M. Busch~ Bonsai From Native Trees & Shrubs 

Music On My Playlist  and just seeking out New and Old Music that works! From NPR Tiny Desk Concerts to KEXP Seattle to the Piano Shack to Pomplamoose to Fritz Kalkbrenner and Steve Martin with Edie Brickell everything in between…Music was greatly missed while my ears were recovering from the consequential nerve damage of low CSF caused by arachnoiditis and NOW, I use it every day to help keep me moving.

and some of  My Favorite Authors: Tom Robbins, Anne Rice, Diana Gabaldon, Gregory Maguire, Robin Wall Kimmerer, William Blake, Sharon Kaye Penman, Carol Kaesuk Yoon, Terry Tempest Williams, Clarissa Pinkola Estes, Susanne F. Fincher, William Carey Grimm,  Edith Holden

OTHER RELATED LINKS

The Wellness Universe ~ A Directory of Resources For Your Well Being

The 7 Psychological Stages of Chronic Pain

Seven Ways To Simplify Your Life

Dealing with Depression;Self-Help and Coping Tips to Overcome Depression~From Help Guide.org

16 THINGS TO REMEMBER TO LIVE WITH CHRONIC PAIN AND ILLNESS

 

You Can Help

YEAR 2 Launch
YEAR 2 is IN PROGRESS NOW ~ Watch Launch Video

REMEMBER THE ART FOR ARACHNOIDITIS PROJECT ON GIVING TUESDAY

This is the second cycle of the Art For Arachnoiditis Project, a charitable project of SheilaLynnK Art Studio Fiscally Sponsored by the New York Foundation for the Arts, began as an individual recovery project, became a one-on-one Conceptual Portrait Project for Survivors, and expanded to become a message of connection, empowerment, healing, Awareness and Prevention.

Words cannot express the gratitude we feel for the support and encouragement we received during YEAR 1. Thank you!  Moving into 2016, the project continues to grow.

FUND YEAR 2 ~ It’s tax deductible AT
NYFA [The New York Foundation For the Arts].Or by check payable to the New York Foundation for the Arts, Memo: The Art For Arachnoiditis Project mailed to: SheilaLynnK Art Studio, 345 South Main Street, Wellsville, NY 14895.

Contributions of $2500 or more must be accompanied by a Contribution Letter

MATCH FUNDING: In observation of Giving Tuesday, Double the Donation is giving their service away for FREE from November 17th, 2015 – December 15th, 2015. All nonprofits’ donors can access their database of companies which match employee donations for FREE. Use the search tool to see if your company will match your donation and/or to access the forms, guidelines, and instructions you need to submit your matching gift.

SEE WHERE THE MONEY GOES: The Art For Arachnoiditis Project BUDGET

MORE ABOUT SPINAL ARACHNOIDITIS

In addition to the Activities for Healing with Art provided at artforarachnoiditis.org and Thanks to SheilaLynnK Art Studio  patronsArachnoiditis Survivors and the public received FREE art and creative ideas for healing every day during the Art Every Day Month Challenge [November 2015] hosted by Leah Piken Kolidas at createveryday.com.

LOOKING FORWARD TO THE YEAR 2 ENTRIES

Survivors who submit entries will be entered for a chance to win an Arachnoiditis Survivor Portrait similar to the ones displayed at the exhibit. Two winners will be announced at the close of the Call For Entries in February 2016.

Year 2 Entry Forms will be accepted August 30, 2015- February 15, 2016. We have added MUSIC to the list of Categories.

Search 4 ArachnoiditisSurvivors Song
Survivors’ Song Search

Winner will be determined by Popular Vote from the Survivor Community at the Art For Arachnoiditis Project. To enter the competition: Follow the instructions on the registration form and write, “Survivors’ Song” for your media category (Limit: One Entry for this category). The winning song will be licensed for project use and the winner will receive $35 and assistance in submitting the copyright application to have the song copyright protected in his/her own name.Survivors will be invited to vote for their favorite from Feb 16-March 16, 2016.

Survivors can still sign up for the Album of the Survivor HERE & Map of the Survivors HERE .The Map of the Spinal Arachnoiditis Survivors Registered at The Art For Arachnoiditis Project is Live At Google Maps HERE.

Map of Arachnoiditis Survivors
Map of Arachnoiditis Survivors Registered at the Art For Arachnoditis Project

SUBSCRIBE TO GET NEWS IN YOUR EMAIL

 

 

Spinal Arachnoiditis Awareness Art
WHY YOU CAN HELP Empower Survivors and Increase Awareness DONATE NOW It’s tax deductible at NYFA

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