Category Archives: Photography~Arachnoiditis In Real Life

Photography by Survivors which records what is it like to live with and adapt to arachnoiditis. Written poems, creative non-fiction, and simple descriptions may accompany these photos.

Collage #9



Working smarter to get more done. In case you missed it, I am now Using my Patreon to consolidate many of the online tasks that were eating up too much vertical time.

Getting ready for the YEAR 2 Survivors’ Art Exhibit. The Collage of the Survivors will be on display with other artwork by Survivors.


The Album of the Survivors~Collage Four


Each of us meets the day of the Survivor in our own way and in our own time. We don’t have to do it alone.

If you’d like to be included in the Arachnoiditis Survivor album & collage, please submit a quality image of yourself and your name, as you would like it to appear, in the comments below or email to:, subject line: Add me to the Album

Or join the Album of the Survivors on Facebook.

Let us know the name of the photographer so that they can receive photo credit for the image. Selfies are also welcome. POSTING THE IMAGE HERE AND ON THE FACEBOOK LINK MEANS THAT YOU GIVE CONSENT FOR IT TO BE SHARED WITH THE PUBLIC AS PART OF THE ART FOR ARACHNOIDITIS PROJECT. THIS CONSENT APPLIES ONLY TO THE IMAGE YOU POST HERE. No other images or information about you will be shared or publicized without your explicit written consent.

The Album of the Survivors will appear in the Art For Arachnoiditis Project book, Still Standing, Sometimes, on the Art For Arachnoiditis Tab at, on the Art For Arachnoiditis Facebook page, and in the Public Arachnoiditis Awareness Art Exhibition.


The Art For Arachnoiditis Project is  An Art, Adaptability and Empowerment Project about Living With Arachnoiditis. It is a Charitable Project to empower Survivors via participation in the arts Hosted by SheilaLynnK Art Studio.

As part of the Art For Arachnoiditis Project, FREE Conceptual Portrait projects will be scheduled on a first come-first served basis. Send the registration form to sign up to have your 16″ x 20″, Graphite on Paper, Conceptual Portrait Drawn by Sheila and included in the Public Art Exhibit (you will get an 11″ x 14″ copy to keep)and/or have your story added to the Art For Arachnoiditis Websites and the book.

Traveling With Arachnoiditis

Traveling With Arachnoiditis

Road Trip

A road trip for the average person often includes a view like this one.  Although the survey results won’t be in until after August 15, 2014, I am fairly confident when I say that the majority of Arachnoiditis Survivors limit travel time to medical appointments and absolute necessity journeys.  Because arachnoiditis scars the nerves in the lumbar spine restricting movement, limiting positioning options , and making sitting or bending at the waist excessively painful; most survivors are unable to drive for long periods of time.  Add to that the difficulties created by the vibration of the road, the bumps and sudden shifts and the Survivor ends up in too much pain to enjoy any outing anyway.

Travel connects us to the real world community, if you are a Survivor who has found a way to accommodate arachnoiditis to permit you to travel, please share your photos of what you do to enjoy this option.

Send them to Subject line: TravelingWithArachPhoto.

Show us what keeps you comfortable, share available links to products or services which help you, what journeys are worth the effort, and tell us a little bit about how you benefit from your destination. Your photos  & photo credit will be added to the Art For Arachnoiditis Photo Gallery.

I look forward to seeing your photos!