Map of Spinal Arachnoiditis Survivors Registered at the Art for Arachnoiditis Project

About Art For Arachnoiditis.org

“I am an Arachnoiditis Survivor since 2007. I use the arts as a tool for living with arachnoiditis in my life. I created the Art For Arachnoiditis Project in 2014 to Empower fellow Survivors. As the project grows, I am sharing my daily discoveries about Creative Tools for Independent Sustainable Wellness.” ~Sheila L. Kalkbrenner

The project is now Fiscally sponsored by the New York Foundation for the Arts, a 501(c)(3) tax-exempt, non-profit organization; it began at  SheilaLynnK Art Studio in March 2014, as a one-to-one Survivor Portrait Project. It has grown into a Charitable Creative Wellness Art Project serving Arachnoiditis Survivors around the world. I am a  member of the Wellness Universe Online Directory of Resources to expand your Well-Being.

mapofsurvivors9-9-16bwutotal
Map of Spinal Arachnoiditis Survivors Registered at the Art for Arachnoiditis Project

[Arachnoiditis is a spinal cord injury caused by the neurotoxins in spinal injections and invasive spinal procedures. This website is intended to provide a practical coping resource which supplements the numerous support groups available in Social Media and is NOT intended as medical advice or guidance. All visitors are advised to consult a trustworthy naturopath or physician prior to making any assumptions about prognosis, diagnosis, or changes in Arachnoiditis care or treatment.]

year3fiscalpromocover9-19-16question

WILL THERE BE A YEAR 3?  IF SO, YEAR 3 brings a FREE, EIGHT WEEK Online Creative Wellness Program for Spinal Arachnoiditis Survivors. Find out more about this and how you can make sure it happens HERE.

The project provides an affordable venue for Survivors to tell our story through Independent Publishing Services, display original healing art by Arachnoiditis Survivors,  encourage healing through assorted Healing Art Activities, and creative practices used in ancient and modern art therapy applications, provide methods for arachnoiditis survivors to document survival and adaptation through the arts, establish a venue to publicize arachnoiditis awareness/prevention events using original art by Arachnoiditis Survivors, and (to the best of my ability) supply credible links to resources for survivors.

Survivors who submitted entries for the YEAR 2 Survivors’ Art Exhibit were entered for a chance to win an Arachnoiditis Survivor Portrait similar to the ones displayed at the exhibit.   SurvivorPortraitWINNERSpost3.12.16

 

 

 

 

 

 

Information about YEAR 3 (2016-2017) Registration can be found HERE.

SUBSCRIBE TO RECEIVE QUARTERLY NEWS AND BUDGET UPDATES IN YOUR EMAIL

Current project activities, announcements, and studio updates are also FREE to the public in the Activity Feed on Sheila’s Patreon Page.

Endorsements from Survivors, Advocates, and Participants are useful in obtaining funding and support for the project. These are greatly appreciated! Keep ’em coming.

ExhibitCollage5.28.16

This Exhibit, Featuring Art by Arachnoiditis Survivors, was Open at SheilaLynnK Art Studio April 30th and FREE to the public during Open Studio Hours until May 28th 2016.
MORE ABOUT THIS EVENT            Watch video

FUND OUR CREATIVE WELLNESS GOALS~ It’s tax deductible AT NYFA [The New York Foundation For the Arts] or via check made payable to The New York Foundation for the Arts, MEMO: The Art For Arachnoiditis Project; MAILED TO: SheilaLynnK Art Studio 345 South Main Street Wellsville, NY 14895. Contributions of $2500 or more must be accompanied by a Contribution Letter.

Joining other states in the nation, with Dedicated Assistance from Senator Catherine Young; the Governor of New York State has proclaimed July to be Arachnoiditis Awareness Month.

a4awsenatoryoung
Photo provided by Senator Catherine Young’s Staff Photographer 

Many thanks to our current sponsors. Advocates, businesses, and independent individuals, this project could not happen without your support. Arachnoiditis Awareness Merchandise and Art By Survivors sales also help to finance this project.

Scroll down to see the directory of other artforarachnoiditis.org topics and posts.

The Art For Arachnoiditis Project is NOT affiliated with any commercial agencies. There are no affiliate links on this page. However, in the interest of funding other aspects of the project, we have not upgraded our WordPress Account to an Ad Free level. Any ads you see on this website have been posted there by WordPress. 

Here to provide coping tools for Survivors; The Art For Arachnoiditis Project is NOT a forum for selling Medical Advice or Services or to recruit participants for Political Agendas.

 

 

7 thoughts on “About Art For Arachnoiditis.org

    1. Hello Jennifer, I am not sure what kind of help you are seeking. However, you can find some useful posts here about adapting and coping with arachnoiditis. Also, there are numerous closed support groups available on facebook and other social media. Some basic links to those resources are listed here: http://sheilalynnkart.com/artwork/3491498_What_is_Arachnoiditis.html. From here you should be able to find other groups who might meet your specific needs. Wishing you a low pain day.🙂

  1. I was diagnosed with Arachnoiditis in 2010. I found a great protocol for Arachnoiditis. It is the method of Forest Tennant M.D. I have been having issues with my thyroid. I had all my hormones tested and also found out I have very high numbers in my inflammatory markers. This protocol for treatment of Arachnoiditis has all this information in it. I have been suffering for all this time and there was a reason. The pain we have has made our systems work overtime and they are just wore out. I am going to call this doctor tomorrow. I am sick of having different doctors treat me and not one have tied it all together. I was given an order for a test for adrenal and I goggled adrenal and Arachnoiditis and this medical protocol came up. It has everything you need to know to treat Archnoiditis. My hormones are crazy. One is very high one month and low the next month. I am sick of being sick all the time! I think this protocol is good information for our treatment.
    The Arachnoiditis education project. January 2016

    1. Carol, Thank you for letting us know. You might like to share this information in the numerous support groups. Just follow the groups listing link in the narrative at the beginning of the home page. ~Wishing you a low pain day. This website is NOT intended as medical advice or guidance. All visitors are advised to consult a trustworthy physician prior to making any assumptions about prognosis, diagnosis, or changes in Arachnoiditis care or treatment

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s