Category Archives: Funding for Art For Arachnoiditis




Art For Arachnoiditis is An Art, Adaptability and Empowerment Project about Living With Spinal Arachnoiditis. It is a Charitable Project of SheilaLynnK Art Studio fiscally sponsored by the New York Foundation for the Arts, A 501(C)(3) non-profit organization. 
Among the services provided, the Project Includes this Website for Survivors which served 93 countries in 2015 (WordPress Report).


At the risk of over-simplifying… Arachnoiditis is a spinal cord injury caused by the neurotoxins in spinal injections and invasive spinal procedures.READ  MORE ABOUT ARACHNOIDITIS



Don’t Give Up

We received some wonderful art by survivors as we squeaked through Year 3 with a less-than-ideal fiscal outlook, and personal family illness and death. Although we didn’t reach the Year 3 fiscal goals, we are moving into Year 4 with some hopeful adjustments And a Modified Method to present a FREE Independent Study Creative Wellness Program to Survivors Registered at the Project. [FIND OUT MORE]


As always, the current Income/Expense report is available to the public. Though our intentions are always to provide as many services as possible to support Arachnoiditis Survivors in their Creative Wellness Efforts; we are limited by our fiscal abilities and physical resources.

Your purchases in The Art For Arachnoiditis Shop benefit this project.


FUND OUR CREATIVE WELLNESS GOALS~ It’s tax deductible AT NYFA [The New York Foundation For the Arts] or via check made payable to The New York Foundation for the Arts, MEMO: The Art For Arachnoiditis Project; MAILED TO: SheilaLynnK Art Studio 345 South Main Street Wellsville, NY 14895. Contributions of $2500 or more must be accompanied by a Contribution Letter.


As of this post, The Artist Stipend for this project remains unpaid. Additional details available in The Art For Arachnoiditis Project CUMULATIVE FISCAL SUMMARY   

New to the project? Visit THE PROJECT PAGE to see what this is all about.


To minimize the cost to the Arachnoditis Survivors for shipping, insurance, and other usual exhibition expenses; There IS a $5 registration fee for the Survivors’ Art Exhibit to assist with the cost of  making prints and processing digital entries for display. Other than that one annual exhibit fee; All Spinal Arachnoditis Survivors registered receive Project Benefits for FREE since the project began.

Pending Adequate Funding, the YEAR 4 Survivors Art Exhibit will be FREE and open to the public after June 1, 2018. Tentative location: Alfred, NY. Actual Date, time, location TBA.


Find Survivor Registration Info on the HomePage

Quilt Raffle ~Ends 5.27.2016

“Threads of Hope” is a collaborative Fabric Art Project[85” x 92” Queen Size Quilt]  Organized by Linda Funsch,Designed and Pieced by The Art For Arachnoiditis Quilt Group of Arachnoiditis Survivors:

Linda Funsch, Grand Blanc, MI

Elisabeth Andersson, Vancouver, British Columbia, Canada

Paula Salum Barber, Lawton, OK

Maria Call, Tucson, AZ

Cheryl Commarato, Colonia, NJ

Pat Griffith, Nevada, MO

Wende Starr, Allen Park, MI

Larisa Bass Stogsdill, Midwest City, OK

Mo Thomas , North Kingstown, RI

And quilted by Linda Funsch

They have generously donated this Quilt to The Art For Arachnoiditis Project YEAR 2 Survivors’ Art Exhibit 2016 Fundraiser as a Raffle Quilt

Tickets will be sold online in The Art For Arachnoiditis Shop at and at SheilaLynnK Art Studio. Threads of Hope will be on display during the Year 2 Exhibit. Opening April 30, 2016 through May 28, 2016 in Wellsville NY.

Proceeds from the raffle will benefit The Art For Arachnoiditis Project

Tickets are $1 each [OR Receive EXTRA tickets when purchasing online=TWO for $1]  For ONLINE purchases: Ticket Numbers will be delivered to you via email. Please allow 24-48 hours minimum for processing. Thank you for your patience. Contact the studio if you have any questions about your order.

If you prefer to purchase your tickets through the mail ($1 each or Six for $5), do so at:     The Art for Arachnoiditis Project at SheilaLynnK Art Studio, 345 South Main Street, Wellsville, NY 14895.  Please make checks & money orders payable to: 

SheilaLynnK Art Studio, Memo: The Art for Arachnoiditis Project                                                        (Stickers with your name & phone number for ticket orders of $10.00 or more are greatly appreciated)  The Winning Ticket will be drawn at 4:00pm On Saturday, May 28th during Open Studio Hours at SheilaLynnK Art Studio. Need not be present to win. The Quilt will be available for pick-up or delivery AFTER the YEAR 2 exhibit closes.

TWO for $1


Fiscally sponsored by the New York Foundation for the Arts, tax-deductible contributions can be made to

The Art For Arachnoiditis Project via checks made payable to The New York Foundation for the Arts

Memo: The Art For Arachnoiditis Project mailed to SheilaLynnK Art Studio

Or Online at The Art for Arachnoiditis Project ~Events page

You Can Help

YEAR 2 Launch
YEAR 2 is IN PROGRESS NOW ~ Watch Launch Video


This is the second cycle of the Art For Arachnoiditis Project, a charitable project of SheilaLynnK Art Studio Fiscally Sponsored by the New York Foundation for the Arts, began as an individual recovery project, became a one-on-one Conceptual Portrait Project for Survivors, and expanded to become a message of connection, empowerment, healing, Awareness and Prevention.

Words cannot express the gratitude we feel for the support and encouragement we received during YEAR 1. Thank you!  Moving into 2016, the project continues to grow.

FUND YEAR 2 ~ It’s tax deductible AT
NYFA [The New York Foundation For the Arts].Or by check payable to the New York Foundation for the Arts, Memo: The Art For Arachnoiditis Project mailed to: SheilaLynnK Art Studio, 345 South Main Street, Wellsville, NY 14895.

Contributions of $2500 or more must be accompanied by a Contribution Letter

MATCH FUNDING: In observation of Giving Tuesday, Double the Donation is giving their service away for FREE from November 17th, 2015 – December 15th, 2015. All nonprofits’ donors can access their database of companies which match employee donations for FREE. Use the search tool to see if your company will match your donation and/or to access the forms, guidelines, and instructions you need to submit your matching gift.

SEE WHERE THE MONEY GOES: The Art For Arachnoiditis Project BUDGET


In addition to the Activities for Healing with Art provided at and Thanks to SheilaLynnK Art Studio  patronsArachnoiditis Survivors and the public received FREE art and creative ideas for healing every day during the Art Every Day Month Challenge [November 2015] hosted by Leah Piken Kolidas at


Survivors who submit entries will be entered for a chance to win an Arachnoiditis Survivor Portrait similar to the ones displayed at the exhibit. Two winners will be announced at the close of the Call For Entries in February 2016.

Year 2 Entry Forms will be accepted August 30, 2015- February 15, 2016. We have added MUSIC to the list of Categories.

Search 4 ArachnoiditisSurvivors Song
Survivors’ Song Search

Winner will be determined by Popular Vote from the Survivor Community at the Art For Arachnoiditis Project. To enter the competition: Follow the instructions on the registration form and write, “Survivors’ Song” for your media category (Limit: One Entry for this category). The winning song will be licensed for project use and the winner will receive $35 and assistance in submitting the copyright application to have the song copyright protected in his/her own name.Survivors will be invited to vote for their favorite from Feb 16-March 16, 2016.

Survivors can still sign up for the Album of the Survivor HERE & Map of the Survivors HERE .The Map of the Spinal Arachnoiditis Survivors Registered at The Art For Arachnoiditis Project is Live At Google Maps HERE.

Map of Arachnoiditis Survivors
Map of Arachnoiditis Survivors Registered at the Art For Arachnoditis Project




Spinal Arachnoiditis Awareness Art
WHY YOU CAN HELP Empower Survivors and Increase Awareness DONATE NOW It’s tax deductible at NYFA







The Art For Arachnoiditis Project fiscally sponsored by NYFA

The Art For Arachnoiditis Project is a SheilaLynnK Art Studio charitable endeavor and Fiscally Sponsored project of the New York Foundation for the Arts
The Art For Arachnoiditis Project is a SheilaLynnK Art Studio charitable endeavor and Fiscally Sponsored project of the New York Foundation for the Arts

Tax-deductible contributions may be made by credit card online at NYFA . All contributions over $2500 must be accompanied by a contribution letter.

Individuals can also make a tax-deductible contribution to the Art For Arachnoiditis Project by sending a check payable to: The New York Foundation For the Arts        Memo: The Art For Arachnoiditis Project

Mail to SheilaLynnK Art Studio, 345 South Main Street, Wellsville, NY 14895. This check will then be deposited to the project via our NYFA account.

Arachnoiditis Survivors are NOT in any way obligated or expected to provide or secure funding for the Art For Arachnoiditis Project. This project has been developed FOR fellow arachnoiditis survivors. Please do not solicit them for funding. However, feel free to share these details with any other advocate, individual, or business entity who may be interested in supporting the Art For Arachnoiditis Project.

Our first exhibit will be open to the public April 18-May 8, 2015, at the Fountain Arts Center, Belmont, NY. Opening Reception April 18th 1-4pm. Over 70 entries of art and photos by Survivors were received. Approximately 55 pieces of Artwork by Survivors will be displayed at the exhibit.

Also at the exhibit:

SIX Survivor Portraits created during  Arachnoiditis Survivor:A Portrait of Resilience Against Patient Harm  Technology permitting, videos of these portraits in progress will also be presented during the opening reception.

Map of Survivors ~ over 190 locations around the world registered by Arachnoiditis Survivors via the Art For Arachnoiditis Project  marked on a world map with Arachnoiditis Awareness map pins.

Digital Collage(s) of selfie images contributed to the Album of the Survivors

Honesty and Hope (a.k.a. No Pain, No Gain)

Still Standing shadow box installation  ~Sheila’s first art for arachnoiditis project

The Ostrich cot will be available for Reasonable Accommodations practice and demonstration purposes.


Sample Endorsement Letter

As we continue to seek funding and Fiscal Sponsorship for the Art For Arachnoiditis Project, it becomes increasingly important for us to be able to show the benefits of the project.

If you would like to offer your endorsement, support or submit a testimonial about the benefits you have received from following and/or active involvement with the project, this template may serve as a resource to help you to do so in your own words.These endorsements and support are a critical portion of eligibility for project funding. Send your endorsement via attachment in an email to: subject: A4A endorsement letter

Please send by January 20, 2016 If you would like to contribute your endorsement/testimonial about The Art For Arachnoiditis Project to our 2016 grant applications. Thank you!


Sample Endorsement Letter for the Art For Arachnoiditis Project
Sample Endorsement Letter for the Art For Arachnoiditis Project

Printable Sample Also Available on Google Docs.

Project Business, Budget, and Forms

Independent Account for The Art For Arachnoiditis Project
Independent Account for The Art For Arachnoiditis Project

Funds are housed in the Art For Arachnoiditis Project account until they are applied to project expenses.

Updated Project Budget

The estimated budget is determined by a best-estimate practice. The budget is adjusted as actual costs are applied. Travel expenses fluctuate with industry rates.


Art For Arachnoiditis Project Pledge Form
Art For Arachnoiditis Project Pledge Form

Please use this form if you are a business or individual who would like to make a monetary pledge to the Art For Arachnoiditis Project at SheilaLynnK Art Studio.

Some businesses prefer to Become a Sponsor of the project.

Other individuals prefer to buy merchandise to support the project.



Pampered Chef and Art For Arachnoiditis

Pampered Chef Fundraiser For:
Art for Arachnoiditis Survivor Project
Sheila Kalkbrenner & Jessikah Taylor on Behalf of All Arachnoiditis Patients Invite you to Join Us in this Fundraising Effort.  Please Share and Invite others to Join The Fundraiser! There are no markups in Pampered Chef Products during Fundraisers:)  So Shop Confidently as ALL our products come with a “Love it” guarantee, most have a 1,3 or 5 year warranty and many have Lifetime warranty! 
Support Arachnoiditis Efforts When You Stock up and Simplify your Kitchen with Quality Pampered Chef Products! Order August 1-15, 2014. Make sure to add your Order to the “Art for Arachnoiditis” Show
This is a Fundraiser to help raise the much needed funds for the 
Art for Arachnoiditis: Survivor Project
Which will promote Arachnoiditis Awareness, Document Daily Struggles and the Permanent Disability that Arachnoiditis Patients Suffer. 
Through Art we Hope to Open the Eyes of the Public to the Arachnoiditis Cause including Awareness, Education and Prevention. 
Sheila Kalkbrenner a New York Artist with Arachnoiditis, will be interviewing, photographing and then making a Conceptual Portrait of Volunteer Arachnoiditis Patients. Through these Conceptual Pieces, the artist will convey what it’s like to live with Arachnoiditis while Showing the Humanity which Still Resides within the Arachnoiditis Patient.
The Collection of Portraits will be Shown in an Exhibit Dedicated to Arachnoiditis Awareness and Prevention.
•Fundraiser Date: Aug 1-15, 2014
•Order Online at:
*Add Order to the Show setup for
“Art for Arachnoiditis”.
•After you Order through the Fundraiser. Please consider Hosting Your Own Pampered Chef Show. You will get the Monthly Host Offer and FREE Products, Half-Off Products and Discounts on everything else you buy! Plus you’ll get 10% off any other purchases for a year!
BOOK Your Own Show During the Fundraiser and an ADDITIONAL Donation will be made to support Art for Arachnoiditis!
Contact your Pampered Chef Consultant to set up your own show 
•Pampered Chef Consultant: 741412 Jessikah Taylor (502)797-8955

Funding Secure!


My Path © Sheila L. Kalkbrenner



Thanks so much for sharing my project, message, and purpose with the public. 

We have exceeded our minimum goal of $2500! 

Raised so far: $2750                    Donors: 26                Project Page Views: 3295
(last updated 6.17.14slk)

“Arachnoiditis Survivor: A Portrait of Resilience against Patient Harm in America is moving forward! 

Over the next few weeks, I will be scheduling interviews and photo sessions with Survivor Volunteers. I am truly looking forward to meeting some of the other survivors, sharing the healing power of art, discussing experiences and ideas about adaptability & reasonable accommodations, and creating an empowered, connected healing community as we increase arachnoiditis awareness and work together to prevent future adverse outcomes. I am excited to explore the creative challenges of building authentic, meaningful, conceptual portraits for this diverse culture of survivors.” ~slk

As a reward for reaching our minimum goal, AIM|Hatchfund has granted an EXTRA 30 days to accept any additional donations. These funds will be distributed on a weekly basis to this Art For Arachnoiditis project.  Please let anyone who intended to donate know they still have time to make a tax-deductible contribution.  

You might remember from the project launch (plan A) that the average cost to travel to each Survivor Volunteer (excluding food) is $565.45. Every additional contribution helps expand the reach of the project & the awareness message by providing supplemental funding for:

Empowering face-to-face interviews with survivors, creating the documentary photo series with fellow Survivors, publicity & expansion of the public art exhibition of the project images 

 All donations from this point on are guaranteed to be applied to the Arachnoiditis Survivor project.

Any questions about the AIM|Hatchfund organization can be directed to:

 Erin Cooper Program Officer, AIM Hatchfund ph: 877-893-0587


You can join us here for the rest of this journey  and by clicking “Follow” on the Arachnoiditis Survivor Hatchfund link.

Arachnoiditis Survivors are asked to complete this anonymous survey and return it to the studio by August 15, 2014

Now accepting input from Survivors who are ready to tell their arachnoiditis story.

Although it is a shame that there are so many people in need of this resource, it is exciting and validating to know that many Arachnoiditis Survivors have faith in the empowering benefits of this art project. We are determined to show the faces affected by this hidden adverse outcome.” ~slk 

SheilaLynnK Art Studio, Art For Arachnoiditis, 345 South Main Street , Wellsville, NY 14895  fax/ph:585-593-4161

Studio visits available by appointment.