Category Archives: Events


Theme: Unified for WellnessFBcoverPage2.2.18 ***Survivors, please remember, you are not expected to fund this project. It is here to benefit you. You do not need to send any additional funds beyond the cost of your registration fee for your art entry. You are NOT required to submit an entry in order to participate in the project.
There are many other FREE methods to participate.***  


  • Survivors can still sign up for theAlbum of the Survivors HERE & Map of the Survivors HERE .The Map of the Spinal Arachnoiditis Survivors Registered at The Art For Arachnoiditis Project is Live At Google Maps HERE. 
  • Hope Cards for Arachnoiditis Survivors from anyone who would like to encourage an arachnoiditis Survivor on a path to Independent Sustainable Wellness are being accepted Now. There is no fee to enter this category. Find out more about that HERE.
  • You must be registered with the project via the attached registration form to be eligible to receive a FREE copy of the Creative Wellness Program Independent Study pdf. No fee is required if this is the only reason you have registered. 


Deadline April 9, 2018 ($5 Entry Fee for each entry)




Keep scrolling for MORE FREE Activities for Healing with Art


Coping Tools for Survivors  & Survivors’ Stories 




Call For Photos for YEAR 3


Arachnoiditis Survivors, Do YOU have a soul place?

During YEAR 3 of the Art For Arachnoiditis Project you are invited to tell us about it and submit a photo of your Soul Place with this much easier NEW ENTRY FORM.

Due to complications and errors with the previous entry form and its processing system; the entry deadline has been extended. Entries will be accepted until January 31, 2017, for use in the online gallery at, future project promotional publications, and live exhibits that are FREE to the public. There is no fee for this entry.

Shortly after you submit your entry, you will receive a complimentary Wellness Meditation Coloring Page from SheilaLynnK Art Studio and an opt in message with an offer to add you to the mailing list for the Art For Arachnoiditis Project quarterly newsletter. Your decision to receive the newsletter (or not) in no way influences the status of your entry.

Upon approval, your photo may be included in YEAR 3 of the Art For Arachnoiditis Project at

Accepting Entries in this category Sep 25, 2016 – January 31, 2017.

This is a FREE entry.

WATCH Video from the YEAR 2 (2015-2016) Survivors’ Art Exhibit HERE

Find out more about the YEAR 1 (2014-2015) Survivors’ Art Exhibit HERE

Preparing for the Exhibit from SheilaLynnK Art Studio

I am posting a lot about the prep for the exhibit on my blog during my Thirty, Thirty, Thirty 2015 blogpost project. This year 30.30.30 means Thirty days, Thirty Posts, Thirty minutes each.

If you missed an update on Facebook, you will probably find it there.

Here is the post from Day 9.

Day 9~ Transformations and Triggers

Map of the Survivors Collage
is based on entries submitted for our live digital Map

The Map of the Spinal Arachnoiditis Survivors Registered at the Art For Arachnoiditis Project

has evolved into a mixed-media Google Maps collage project. At 218 registered Survivors, it requires some creative placement of all the parts to ensure we don’t leave anyone out.
Each registered location will be marked with Arachnoiditis Awareness Map Pin. Assembled and contributed to the project by Linda Funsch, the designer of the Awareness Ribbon.
The Map came late to the project plan. As more people discovered the project it seemed to make sense to find out where they were from. The next step was to keep a record of it so that Survivors in geographic proximity could find each other and share resources.
After that, it seemed appropriate to create something which will show how this project is bringing Survivors together from around the world.
Originally intended as a large community youth project, a serious illness interrupted the group leader’s plans. So,  the Map is now slowly being created in my studio. I believe it will continue to transform as this project grows.
Sanctuary and Boundaries
I hadn’t really envisioned the map as a collage project. The Method Muse of my Sanctuary Collage seems to have adhered itself to other projects in the studio.
Other Transformations…. The Opening Reception Workshop (for a fee) has evolved into a FREE Independent Adaptive Art Activity. Those attending will have the opportunity to create an art project using the Ostrich Cot. The Activity will be timed to show the importance of Time Management when Living and Working with Arachnoiditis.
New Supplies for the Independent Adaptive Art Activities
Ostrich Cot with NEW face cushion
and Drawing the Survivor Portrait for Karen
Even My Ostrich Cot is still transforming. My NEW cushion for my face arrived today. The cot works quite well as is when you get it. I have found though that when it is re-purposed for long term and frequent use it helps to add individual ergonomic adjustments and pain relief tools (i.e. extra padding under the abdomen, a knee pillow, neck and shoulder heating pad, etc.). The Ostrich Cot helps me to remain productive during my horizontal time. I sometime push myself to stay vertical too long because I have other work to do or simply because it’s really stinkin’ boring just laying here looking at the ceiling.
I keep saying I am going to paint a mural on the ceiling as another method of working horizontally but, I haven’t quite worked out the logistics or the balance to climb up and down from the scaffolding so that I can lay on my back to paint it. Another one of those Projects for Another Day.


In the world of work, art, chronic pain, permanent disability, personal evolution, and self-employment there are many triggers to transformation.  One of those is a true appreciation for the work of other artists.
This morning a friend showed me a wonderful video of the making of a Papier Mache Dragon Trophy by Dan Reeder as I was in the middle of appreciating the quality of the time lapsed video and looking forward to seeing the end result my friend said,
“This is time lapsed and taking a really long time. It must be months and months of work! We’re talking MONTHS! What you’re doing is nothing!” 
In an instant my appreciation was stifled by the initial hurt– immediately followed by the wordless amazement I had for this friend’s inability to comprehend the scope of what I am doing.
Knowing absolutely nothing about the artist, I didn’t feel I could respond with anything like, “What else is he doing with his time? What other obligations does he have? What limitations is he working with? How long can HE be vertical before he has to stop working?”
All of these thoughts machine-gunned through my mind. The safety must have been on my mouth-trigger. No words came out.
The majority of my work relies on self motivation and self discipline. My faith in what I am doing is often undermined by weaknesses in those areas. lack of validation, a perceived lack of proof that it matters to anyone else…and some doubt as to my ability to actually DO these things at all.
This tense cloud hung over my day. Pushing it to the back of my mind, I continued working and enjoying parts of my day. Eventually, a muscle relaxer was involved to ease the consequential muscle spasms. (This is an established result of STIFLING since onset of arachnoiditis. I should know better.)
I was angry…not exactly at my friend…I had a lot of mixed disappointment-laced feelings there that I still haven’t quite figured out. I reminded myself that this person has a well-deserved place in my heart.
To dwell on this one thing and take it out of context, no matter how truthfully he had just inadvertently expressed his lack of knowledge about what I do,  was not fair to our friendship. Although it was a pretty insensitive thing for him to say, I am certain there was not any malice intended and, well… there is no unwritten law that states he must fully grasp the time, effort, process, or outcome of my work. …but, it would be nice if he (and other people) did.
I think part of my anger was about the way that even after all this time I STILL felt like I had to justify and defend what I am doing. I shouldn’t feel any need to compare my life, circumstances, or work to that of this (or any other) artist. There is no need to quantify or explain it to my friend(s). I sense no compulsion from them to do anything like that in reference to what THEY do.
 I see this as a Trigger, not JUST for muscle spasms, but as a push to STOP falling back into that place.
Old habits die hard. It is long past time for me to transform into a person who fully accepts that THIS is who I am. THIS is what I do. IT and I have value that does not need validation from any other source. I am not who I thought I’d be…but, “I am exactly the person that I WANT to be.” Amanda Palmer
Root:30 Day Art Journal Project (2014) ~ from the Day 9 entry.
Start at DAY 1 of Thirty, Thirty, Thirty 2015

Starting March with a Bloggy Project Update from Sheila

Art For Arachnoiditis Project Admin Team (photo by my grandson)
Art For Arachnoiditis Project Admin Team (photo by my grandson)

Things here have been REALLY busy in the Art For Arachnoiditis Project Operations Office.

The Fiscal Sponsorship contract with the New York Foundation for the Arts (NYFA) has been finalized. Soon our project page will be live there. I will share that link as soon as I have it.

To make it easier for Arachnoiditis Survivors to find us, The Art For Arachnoiditis Project has now been upgraded to a VIP Listing at The Wellness Universe  Online Directory of Resources to Expand Your Well-Being.

” The Mission at the Wellness Universe: The seven areas of wellness are: Emotional, Environmental, Intellectual, Occupational, Physical, Social & Spiritual. From people offering support, to products that improve the betterment of your life, the environment, animals, awareness and education, we here at The Wellness Universe strive to find the best of those resources and list them in a directory for you.”

VIP Listing at WU #WUVIP
VIP Listing at WU #WUVIP

I have been doing a lot of PR & Prep (lesson plans, creating our Healing Power of Art Presentation, seeking product sponsors, and writing our invitations) for the exhibit opening reception and workshop.

Registered Arachnoiditis Survivors do not have to pay a fee to attend the workshop. Limited space is available. Please be sure to register. Survivors Planning to attend the Exhibit & Opening Reception and/or Workshop, please contact the Studio; to register and let us know any necessary accommodations you may require at the Fountain Arts Center in Belmont, NY.                                                                                         Workshop Registration Deadline: March 20th.

The prints of your entries look amazing!  I have just ordered all of the frames and mat boards. I hope the delivery truck can get here. The snow and slush is STILL coming down!

Don’t forget! I have also been processing your forms and photos so check out the list of  registrations/entries.  My creative spirit was assigned the task of designing the  digital collages for the Arachnoiditis In Real Life digital photo series while my inner clerk was doing project administrative tasks (conquering the bottom line). Did I mention the “Clerk” (at tax time) and the “Creative Spirit” have to share the same brain

With the “Best Book Warrior” ? ….who has been revising and recovering from her own revisions to the publication agenda for the Book Project: Still Standing, Sometimes. She is  determined to make this publication a valuable and reputable resource for Arachnoiditis Survival, Awareness,  and Prevention.

THIS WEEK: Drawing Survivor Portraits will resume between organizing (finding) community volunteers to help paint the Map of the Survivors. As an incentive, volunteers receive B~Arter Bucks from SheilaLynnK Art Studio for participating in the Map-making project. Did you know there are over 186 locations from around the world registered to be displayed on the map so far?

Thanks so much to Linda Funsch! She is putting the Arachnoiditis Awareness ribbon stickers on all of the map flag pins. Each location will have it’s own pin with an Awareness Ribbon. The map is scheduled to be finished in time for display at the exhibit.

TECH UPGRADES ARE HERE! I am patiently waiting for the “Tech Support Crew Chief” to install them.

My own personal aching arachnoiditis entity is not hesitating to add her voice to these proceedings. She attacks at some of the most inopportune moments in the middle of very important tasks. However, I am partially to blame as I have been pushing myself into too much vertical activity (she is very vocal in her objection to this) while waiting for tech upgrades that will allow me to resume doing more of the computer work from a horizontal position. ….did I mention I am also the tech support crew chief at the Art For Arachnoiditis Project?

A Message From the Gravitationally Challenged
A Message From the Gravitationally Challenged TECH Support Team.

In answer to the recent question, “What do you do when you are NOT working on the Art For Arachnoiditis Project?”

My first moving meditation zentangle, ZenFeathers.

Putting some of My own photography in the Wellsville Art Association Annual Photo Show

Planning SWAN Day Party 2015 at the Belfast Organization for Artists

and on March 6th…starting Muse Moving Music Friday, a virtual gathering to share and enjoy music appreciation via Youtube and other online music sources at SheilaLynnK Art Studio. Happening every other Friday. Anyone can  join us!

and losing an eleven-day game of Scooby-Doo Monopoly!
and losing an eleven-day game of         Scooby-Doo Monopoly with one of my favorite artists!