We appreciate your SUPPORT for the Art For Arachnoiditis Project
THIS PROJECT IS HAPPENING THANKS TO YOU!
Tag Archives: #WUVIP
Arachnoiditis Angels
The First Art For Arachnoiditis Project Exhibit is dedicated in loving memory to Claudine and our other Arachnoiditis Angels.
Eight years ago my first Spinal Arachnoiditis Symptoms began. It was later discovered that I had been misdiagnosed and had been living with chemical meningitis without any treatment. Eventually this became Arachnoiditis in the thoracic and lumbar spine. Although I gradually developed 39 of the 52 symptoms of the Adhesive Arachnoiditis Syndrome described by Dr. Sara Andrea Jones, it took three years for me to get a confirmed diagnosis.
Like many Arachnoiditis Survivors, my life was falling apart, I was in constant pain and NO ONE could/would tell me why.
Claudine was one of several Life With Arachnoiditis support group members/survivors/advocates for prevention who helped me to keep what was left of my sanity during this devastating experience. I will be forever thankful for her compassionate, kind, gentle and encouraging words.
If you would like an image of your Arachnoiditis Angel added to our Album of Angels, please send your memorial photo and dedication to: SheilaLynnK Art Studio 345 South Main Street Wellsville, NY or email to: sheilalynnk@yahoo.com subject: A4A add my Angel OR by posting in the Album of Arachnoiditis Angels or give descriptions/links to your Angel’s story in the comments below. (By providing your Angel’s name, photo, dedication, story, or other notes here, you give your electronic consent for use of this material in ALL Art For Arachnoiditis Project Publications. No additional photos or information of or about your Angel will be published without your written consent.)
Starting March with a Bloggy Project Update from Sheila
Things here have been REALLY busy in the Art For Arachnoiditis Project Operations Office.
The Fiscal Sponsorship contract with the New York Foundation for the Arts (NYFA) has been finalized. Soon our project page will be live there. I will share that link as soon as I have it.
To make it easier for Arachnoiditis Survivors to find us, The Art For Arachnoiditis Project has now been upgraded to a VIP Listing at The Wellness Universe Online Directory of Resources to Expand Your Well-Being.
” The Mission at the Wellness Universe: The seven areas of wellness are: Emotional, Environmental, Intellectual, Occupational, Physical, Social & Spiritual. From people offering support, to products that improve the betterment of your life, the environment, animals, awareness and education, we here at The Wellness Universe strive to find the best of those resources and list them in a directory for you.”
I have been doing a lot of PR & Prep (lesson plans, creating our Healing Power of Art Presentation, seeking product sponsors, and writing our invitations) for the exhibit opening reception and workshop.
Registered Arachnoiditis Survivors do not have to pay a fee to attend the workshop. Limited space is available. Please be sure to register. Survivors Planning to attend the Exhibit & Opening Reception and/or Workshop, please contact the Studio; to register and let us know any necessary accommodations you may require at the Fountain Arts Center in Belmont, NY. Workshop Registration Deadline: March 20th.
The prints of your entries look amazing! I have just ordered all of the frames and mat boards. I hope the delivery truck can get here. The snow and slush is STILL coming down!
Don’t forget! I have also been processing your forms and photos so check out the list of registrations/entries. My creative spirit was assigned the task of designing the digital collages for the Arachnoiditis In Real Life digital photo series while my inner clerk was doing project administrative tasks (conquering the bottom line). Did I mention the “Clerk” (at tax time) and the “Creative Spirit” have to share the same brain
With the “Best Book Warrior” ? ….who has been revising and recovering from her own revisions to the publication agenda for the Book Project: Still Standing, Sometimes. She is determined to make this publication a valuable and reputable resource for Arachnoiditis Survival, Awareness, and Prevention.
THIS WEEK: Drawing Survivor Portraits will resume between organizing (finding) community volunteers to help paint the Map of the Survivors. As an incentive, volunteers receive B~Arter Bucks from SheilaLynnK Art Studio for participating in the Map-making project. Did you know there are over 186 locations from around the world registered to be displayed on the map so far?
Thanks so much to Linda Funsch! She is putting the Arachnoiditis Awareness ribbon stickers on all of the map flag pins. Each location will have it’s own pin with an Awareness Ribbon. The map is scheduled to be finished in time for display at the exhibit.
TECH UPGRADES ARE HERE! I am patiently waiting for the “Tech Support Crew Chief” to install them.
My own personal aching arachnoiditis entity is not hesitating to add her voice to these proceedings. She attacks at some of the most inopportune moments in the middle of very important tasks. However, I am partially to blame as I have been pushing myself into too much vertical activity (she is very vocal in her objection to this) while waiting for tech upgrades that will allow me to resume doing more of the computer work from a horizontal position. ….did I mention I am also the tech support crew chief at the Art For Arachnoiditis Project?
In answer to the recent question, “What do you do when you are NOT working on the Art For Arachnoiditis Project?”
My first moving meditation zentangle, ZenFeathers.…
Putting some of My own photography in the Wellsville Art Association Annual Photo Show
Planning SWAN Day Party 2015 at the Belfast Organization for Artists
and on March 6th…starting Muse Moving Music Friday, a virtual gathering to share and enjoy music appreciation via Youtube and other online music sources at SheilaLynnK Art Studio. Happening every other Friday. Anyone can join us!
Easy Art Activity #19 Fight, Flee, or FLOW
As I was working through Day 21 and Day 22 of FLOW #30dayjournal project I accepted that Living Well with Arachnoiditis means developing a delicate balance between the decision to Fight or Flee. My natural inclination is to FIGHT! against the injustice that allows arachnoiditis to occur…to FIGHT! against any threat to those I love…to FIGHT! against the arachnoiditis-related threats to my independence…
FIRST GENERAL ORDER OF THE U.S. ARMY: “I will guard everything within the limits of my post and quit my post only when properly relieved.” I am pretty sure that I believed this mantra even BEFORE I joined the Army. Active duty just made it stronger.
“Adjust to the object and you will find your way around or through it.”
As I mature, I am beginning to realize that there are ways to “guard” the intangible valuables of our lives without active, physically and emotionally exhausting aggression. To Survive and Live Well we must choose our battles carefully. Save our resources for the battles that matter and fight at a pace that will NOT conquer our inner strength.
Apathy is the enemy of progress but, being geared toward constant combat will be the death of me. I can’t/won’t be the doormat under the boots of corruption but ammo explodes to its demise after its launched into the fray. The Happy Place lies somewhere in the middle.
Fighting for and maintaining my happiness and the happiness of those around me must always be my priority. The other battles, although very important, are secondary and require a support team.
if you struggle with feeling good (~Lisa Sonora)
“Happiness is the consequence of personal effort. You fight for it, strive for it, insist upon it, and sometimes even travel around the world looking for it.You have to participate relentlessly in the manifestations of your own blessings.And once you have achieved a state of happiness, you must never become lax about maintaining it. You must make a mighty effort to keep swimming upward into that happiness forever, to stay afloat on top of it.”— Elizabeth Gilbert, from Eat, Pray, Love
Don’t give up. For the sake of happiness, be selective. Perhaps it is best to avoid the lonely fights that trap and bind us at the bottom of the ocean. Unite the forces which breathe life into our efforts. ~slk
“Ferdinand ran to the middle of the ring and everyone shouted and clapped because they thought he was going to fight fiercely and butt and snort and stick his horns around. But not Ferdinand. When he got to the middle of the ring he saw the flowers in all the lovely ladies’ hair and he just sat down quietly and smelled.”
ART ACTIVITY #19
Expanding on the FLOW suggestions from the Day 22 post,
Step 1: Reflect on the most difficult battle you are fighting today, this week, this month, this year.
Step 2: In your journal or on another surface, cut, paste, draw, paint a representation of this battle.
Step 3: Find the music that comforts you during this struggle.
Step 4: Listen to this music as you draw a symbol of yourself flowing peacefully in and around the structures and obstacles of this combat zone to come out the other side in one piece.
The Playlist that FLOWS me through the battlefield today:
Roll The Bones ~ Shakey Graves, Wildewoman ~ Lucius, In My Mind ~ Amanda Palmer, Little By Little ~ Fritz Kalkbrenner, Write Your Story ~ Francesca Battistelli, Garden ~ Mikaela Davis, 46 and 2 Tool Cover ~by School Kids, Wildlife ~ The Prickers, and the Original Music at SheilaLynnK Art Studio by Brian Decker.
No explanations. Just sharing. Wishing you all a low pain week.
Feel free to share your resulting images (without any explanations) here. Use the Registration Form if you would like an image of your work today to be included in the FIRST Art For Arachnoiditis Project Public Exhibit. CALL FOR ENTRIES ENDS Feb. 15, 2015.
Resources for Your Well-Being
COUNTING DOWN TO LIFT OFF! The Wellness Universe Website Launches Today!
 |
| Directory of Resources to Expand Your Well-Being |
WELCOME TO THE WELLNESS UNIVERSE LAUNCH!
Efforts at the studio to contribute
to a better world have been recognized.
Dedicated to the Wellness and Empowerment of Arachnoiditis Survivors, the Art For Arachnoiditis Project at SheilaLynnK Art Studio is an official Member of this Directory.
At no cost to this charitable project, this directory makes the Art For Arachnoiditis Project and other valuable Wellness resources for Arachnoiditis Survivors available to survivors not currently subscribed to Facebook.
The Wellness Universe.com website launches TODAY!
“What seems like a brilliant, keyword searchable catalog of pages in this online directory are far more than that. The actual people creating these pages come together to better the world through their individual efforts, as a whole….TheWellnessUniverse.com is a natural solution to search for content people want to see.” ~BBC Record London Soul Ventures Corps Launches Directory of Facebook Pages
“The Wellness Universe answers the need for an organized resource where the public can reference any topic related to wellness,” states Michelle Gould.
 |
| Launching Today |
Resources for your Well-Being,
Join us! Find Love, Support, Hope, Inspiration, Education from the BEST PAGES of Facebook.
Wishing you Wellness in the year to come!
Art For Arachnoiditis 