All posts by sheilalynnkart

About sheilalynnkart

Creative Wellness Program Facilitator, Empowered Sustain-able Artist of Affordable Art, Spinal Arachnoiditis Survivor, Empowering Fellow Survivors via participation in the arts. My prints and commissioned projects are sold locally and at sheilalynnkart.com. Studio Visits are available by appointment. Exclusive Activity for Patrons here: https://www.patreon.com/SheilaLynnKart

THANK YOU! 2015 in review

2015 Year In Review Map
Providing Healing Support for Survivors

Thank you for your support this year!

Fiscally sponsored by the New York Foundation for the Arts, The Art For Arachnoiditis Project is working to Empower Spinal Arachnoiditis Survivors via participation in the Arts. This website is dedicated to providing healing support to fellow Survivors.

With your help this project becomes a valuable resource to Arachnoiditis Survivors around the world…93 Countries! We couldn’t do it without you.

FUND YEAR 2 ~ It’s tax deductible AT
NYFA [The New York Foundation For the Arts].Or by check payable to the New York Foundation for the Arts, Memo: The Art For Arachnoiditis Project mailed to: SheilaLynnK Art Studio, 345 South Main Street, Wellsville, NY 14895.

Contributions of $2500 or more must be accompanied by a Contribution Letter

The WordPress.com stats helper monkeys prepared a 2015 annual report for artforarachnoiditis.org. Check it out to see how we’ve been doing!

Here’s an excerpt:

A New York City subway train holds 1,200 people. This blog was viewed about 4,900 times in 2015. If it were a NYC subway train, it would take about 4 trips to carry that many people.

Click here to see the complete report.

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Independent Publications by Survivors

Cover Image for Still Standing Sometimes (Part 1)
Cover Image for Still Standing Sometimes (Part 1)

ISBNs Needed!

I have finished the written aspect of this publication.

Introduction excerpt:

“Hearing of many more cases of uncompensated Arachnoiditis while struggling both physically and financially, as well as, in numerous other aspects of my life; in the end, I felt compelled to present this case to the Appellate Division of the New York State Supreme Court….The details of that pro se appeal follow.” ~slk

When I reach the $200 per release mark on my Patreon Page and/or Pending adequate funding, I will purchase an ISBN for this publication so that it can become an affordable resource for Arachnoiditis Survivors working toward accountability for this preventable medical injury. This publication will be free to all who subscribe to the Art For Arachnoiditis Project Newsletter.  Proceeds from any purchase of the publication will be invested in the project.

The Art For Arachnoiditis Project YEAR 2 Budget includes ISBNs for this and other Independent Publication for and by other Arachnoiditis Survivors. We can get 10 ISBNs for $295. Tax-Deductible Contributions made via my fiscal sponsor, The New York Foundation for the Arts, also Support the purchase of ISBNs for Survivor Publication.

Still Standing, Sometimes Part 2: Survivors’ Stories from the Art For Arachnoiditis Project will be Sheila’s Adaptability and Survivor story into Creative Wellness with a collection of all of the stories entered in Year 1 of the Art For Arachnoiditis Project.

Still Standing, Sometimes Part 3: Survivors’ Stories from the Art For Arachnoiditis Project will be a collection of all of the stories entered in Year 2 of the Art For Arachnoiditis Project.

The Survivors’ Exhibit is an art book for the coffee table featuring a collection of all works displayed at the project exhibits during Year 1  of the project.

Survivors Exhibit Art book In progress
Survivors’ Exhibit Art Book ON SALE NOW

SUBSCRIBE TO RECEIVE PROJECT NEWS AND BUDGET UPDATES IN YOUR EMAIL

ALSO STILL IN THE WORKS

Creative Pain Managment
Activity Book {PREVIEW and BUY IT NOW}

Thanks to patrons on my Patreon Page ; we have reached the $50 per release goal which allows me to purchase an ISBN for this Publication. (updated April 25, 2015)

The Creative Pain Management Assessment and Activity Book is NOW Available for purchase for ONLY $15. 

When I get to $400 per Release at Patreon, I will order FIFTY copies of the Creative Pain Management Assessment & Activity Book  for Arachnoiditis Survivors. These copies will be sold to interested Arachnoiditis Survivors registered at the Art For Arachnoiditis Project at the Survivors’ Rate of  ONLY $5.00 (to cover shipping expenses).

I will purchase an ISBN for this publication so that it can become an affordable art & coping tool for Arachnoiditis Survivors Registered at the Art For Arachnoiditis Project and affordable for others living with Chronic Pain.

FUND YEAR 2 ~ It’s tax deductible AT
NYFA [The New York Foundation For the Arts].Or by check payable to the New York Foundation for the Arts, Memo: The Art For Arachnoiditis Project mailed to: SheilaLynnK Art Studio, 345 South Main Street, Wellsville, NY 14895.

Contributions of $2500 or more must be accompanied by a Contribution Letter

At the request of members of the Arachnoiditis Survivor Community; the on-line payment option to support the Art For Arachnoiditis Project as a gift purchase to them is now available.

100% of the gift amount is contributed to the Art For Arachnoiditis Project in honor of the intestinal fortitude of the Arachnoiditis Survivor.

Gifts Purchased in the Art For Arachnoiditis Project SHOP also help support these Independent Publications and other aspects of the project. These fair market and below prices are not tax-deductible purchases.

These works are made possible with support from people like you.

Thank you.

Go-to-Gurus

Last Blooms from 2015 ~photo
“Last Blooms of the Season” found under the large pine tree outside of the studio a few days after the first snow.

Sometimes, quietly sheltered  knowledge blooms in the strangest and most unexpected places at the best possible moment.

On the Arachnoidits Journey, as in the Journey of Life itself; there are many questions we have that cannot be answered or resolved by the practices of “modern” medicine.  I attempt to keep open eyes, ears, and mind for rumblings of sound guidance from many assorted sources.

(DISCLAIMER: I am in no way affiliated with the marketing or compensation received by these individuals. I am in no way “professionally” qualified (read “certified”) to assess the value or merit of the information or references provided by them. I am sharing this information as an experienced patient who has found some comfort in the knowledge shared by these people willing to share the insights they have collected along the way. What you do with this information is done at your own discretion under the influence of your own ability to weigh the benefit/risk value of the written word.)

My list of Go-To-Gurus

Anne Morrow Lindbergh, Author, Gift From the Sea

Alan Alda, Author, If I Understood You, Would I Have This Look on My Face? Adventures in the Art and Science of Relating and Comminicating

Dina Falconi, Author and Wendy Hollender, Artist of Foraging & Feasting; A Field Guide and Wild Food Cookbook 

Katrina Blair ~ at Turtle Lake Refuge, Author of The Wild Wisdom of Weeds; 13 Essential Plants for Human Survival, A forager’s guide to ultimate food security, including 100 nutrient-dense recipes for food, medicine, and self-care. 

John S. Workman ~Author of Fireflies In A Fruit Jar: On Religion, Politics, and Other Wonders by a Southern Preacher-Turned-Journalist

Norman Cousins ~Anatomy of An Illness on combating life-threatening illness through humor and patient participation in care.

Vanessa Couto ~ Liminal Astrology  weaving elements from archetypal astrology, depth psychology, storytelling, dreamwork and art in her coaching and mentoring approach, she helps broaden the understanding of  life’s stories, and view the path ahead with more clarity and confidence.

Sarah Love ~ I Stand For Love  IS A MOVEMENT THAT CULTIVATES AND CELEBRATES LOVE WARRIORS AROUND THE WORLD just like YOU.

Susan Jenkins~Shamanic Healing  ~bringing over 30 years of experience to her practice as a shamanic healer.

Anne Haymen~Sharing practical methods of Bringing Ancient Wisdom into our modern lives. 

Jennifer  One In Yoga ~especially this Gentle Guided Grounding Yoga activity

Lisa Sonora ~ An Artist sharing Inspiration + Practical ideas for living more creatively, courageously, consciously.

Leah Piken Kolidas ~ Creative Every Day  “to share my artwork, thoughts on living a creative life, and what is inspiring me (so much!).” ~lpk

Susun Weed~ Natural Health, Herbal Medicine and Spirit Healing the Wise Woman Way  Her Bio

The Mandala Lady ~Maureen Frank offering “mandala art to provide the inspiration, guidance, and peace you seek along your journey of Self discovery.”

Jennifer Lee ~ at Artizen Coaching  and her Right Brain Business Plan  help me find creative ways to work at home.

Werner M. Busch~ Bonsai From Native Trees & Shrubs 

Music On My Playlist  and just seeking out New and Old Music that works! From NPR Tiny Desk Concerts to KEXP Seattle to the Piano Shack to Pomplamoose to Fritz Kalkbrenner and Steve Martin with Edie Brickell everything in between…Music was greatly missed while my ears were recovering from the consequential nerve damage of low CSF caused by arachnoiditis and NOW, I use it every day to help keep me moving.

and some of  My Favorite Authors: Tom Robbins, Anne Rice, Diana Gabaldon, Gregory Maguire, Robin Wall Kimmerer, William Blake, Sharon Kaye Penman, Carol Kaesuk Yoon, Terry Tempest Williams, Clarissa Pinkola Estes, Susanne F. Fincher, William Carey Grimm,  Edith Holden

OTHER RELATED LINKS

The Wellness Universe ~ A Directory of Resources For Your Well Being

The 7 Psychological Stages of Chronic Pain

Seven Ways To Simplify Your Life

Dealing with Depression;Self-Help and Coping Tips to Overcome Depression~From Help Guide.org

16 THINGS TO REMEMBER TO LIVE WITH CHRONIC PAIN AND ILLNESS

 

You Can Help

YEAR 2 Launch
YEAR 2 is IN PROGRESS NOW ~ Watch Launch Video

REMEMBER THE ART FOR ARACHNOIDITIS PROJECT ON GIVING TUESDAY

This is the second cycle of the Art For Arachnoiditis Project, a charitable project of SheilaLynnK Art Studio Fiscally Sponsored by the New York Foundation for the Arts, began as an individual recovery project, became a one-on-one Conceptual Portrait Project for Survivors, and expanded to become a message of connection, empowerment, healing, Awareness and Prevention.

Words cannot express the gratitude we feel for the support and encouragement we received during YEAR 1. Thank you!  Moving into 2016, the project continues to grow.

FUND YEAR 2 ~ It’s tax deductible AT
NYFA [The New York Foundation For the Arts].Or by check payable to the New York Foundation for the Arts, Memo: The Art For Arachnoiditis Project mailed to: SheilaLynnK Art Studio, 345 South Main Street, Wellsville, NY 14895.

Contributions of $2500 or more must be accompanied by a Contribution Letter

MATCH FUNDING: In observation of Giving Tuesday, Double the Donation is giving their service away for FREE from November 17th, 2015 – December 15th, 2015. All nonprofits’ donors can access their database of companies which match employee donations for FREE. Use the search tool to see if your company will match your donation and/or to access the forms, guidelines, and instructions you need to submit your matching gift.

SEE WHERE THE MONEY GOES: The Art For Arachnoiditis Project BUDGET

MORE ABOUT SPINAL ARACHNOIDITIS

In addition to the Activities for Healing with Art provided at artforarachnoiditis.org and Thanks to SheilaLynnK Art Studio  patronsArachnoiditis Survivors and the public received FREE art and creative ideas for healing every day during the Art Every Day Month Challenge [November 2015] hosted by Leah Piken Kolidas at createveryday.com.

LOOKING FORWARD TO THE YEAR 2 ENTRIES

Survivors who submit entries will be entered for a chance to win an Arachnoiditis Survivor Portrait similar to the ones displayed at the exhibit. Two winners will be announced at the close of the Call For Entries in February 2016.

Year 2 Entry Forms will be accepted August 30, 2015- February 15, 2016. We have added MUSIC to the list of Categories.

Search 4 ArachnoiditisSurvivors Song
Survivors’ Song Search

Winner will be determined by Popular Vote from the Survivor Community at the Art For Arachnoiditis Project. To enter the competition: Follow the instructions on the registration form and write, “Survivors’ Song” for your media category (Limit: One Entry for this category). The winning song will be licensed for project use and the winner will receive $35 and assistance in submitting the copyright application to have the song copyright protected in his/her own name.Survivors will be invited to vote for their favorite from Feb 16-March 16, 2016.

Survivors can still sign up for the Album of the Survivor HERE & Map of the Survivors HERE .The Map of the Spinal Arachnoiditis Survivors Registered at The Art For Arachnoiditis Project is Live At Google Maps HERE.

Map of Arachnoiditis Survivors
Map of Arachnoiditis Survivors Registered at the Art For Arachnoditis Project

SUBSCRIBE TO GET NEWS IN YOUR EMAIL

 

 

Spinal Arachnoiditis Awareness Art
WHY YOU CAN HELP Empower Survivors and Increase Awareness DONATE NOW It’s tax deductible at NYFA

ThankYouPoster2.1.16opp

 

 

 

 

 

Art Every Day Month Cover Collage

Art Every Day Month~Days 29-30

Day 29 ~ “Sweet November” Mandala in Progress. The final Mandala will be available as a Monthly Printable Mandala for my $3 and Up Patrons to print for personal use.

Day 30 ~ This Brick Wall mural in progress is a new addition to the studio. I will be posting updates and progress on this new project in my activity feed at Patreon.

Patrons Also Get These Things

The Rest of the Art Every Day Month Series of Posts are  Here and have been brought to the public via the support of my patrons. 

The Mask ~Acrylic on Canvas Board

Art Every Day Month~Day 28~The Mask

 

Mask Painting Acrylic on Canvas Board
“The Mask” Acrylic On Canvas Board #aedm2015 Day 28

 

“I slap this perfectly sculpted mask onto my face every single day. It is one that has a perfectly carved smile and warm brown eyes. One that is well kept and put together. One that gives the impression that I have skillfully figured out my life. One that tells the world – this woman is happy. This woman is whole. Her life is complete and her heart content. She is courageous, resilient, and strong.  My mask speaks out, “I’m Okay!” All while muffling the screams from inside, “I AM BROKEN! I AM BROKEN! I. AM. BROKEN!”…In the solace of my home – I remove it. Tears that have been contained for days and weeks are released and pour out in uncontainable amounts. The scars and trauma are again visible, if only to myself. My truth is revealed. Only I know the depths of that truth. For it has settled in a dark abyss and the world is too afraid to climb down with me. My mask hides how truly deep my pain runs. It hides it to protect me from the judgment that I should be better. This mask is my most useful tool – yet I despise it most.”

Oh how  “The Mask  ” posted at Still Standing Magazine resonated with me when I read it! Their Mission: “In the face of loss and infertility, our mission is to show the world that we are still standing. Holding fast to resilience and hope. Our mission is to help you embrace life for everything that it is after experiencing the loss of a child or infertility.” 

Arachnoiditis Survivors and others living with Chronic Pain and Illness work to maintain a similar Mask. No matter the source of our Pain and Grief; Resilience and Hope Inspire Survival and LIFE.

The Mask provides a temporary illusion of inclusion which, for a brief time,  keeps the loneliness of reality at bay. But that isn’t its only purpose.

“In many primitive societies, to wear a mask was to invoke a supernatural being. In Africa, masks were used to ward off enemies, to summon ancestors, and in rituals and ceremonies that marked alliances between tribes. Masks, particularly those depicting animals, were also used as a means of denying personal identity, thereby bringing the wearer closer to the paradisial state.” ~Fontana

That Supernatural being is often the ONLY thing that gets us through the day. When It leaves me feeling trapped in the loneliness It creates; Making Art, even when I use symbolism which is not understood by all, helps me un-glue the facade cemented to my soul. The Mask is a duplicitous mate.

No Matter the Cause, Maintaining the mask ~from the body language, to The “Smile” to the Hair ~that we hold up for others can be extremely exhausting…but, I have often asked myself, “What WOULD I do instead?” The alternative is even LESS appealing. MaintainingThe Mask sometimes becomes a temporary link that anchors us to the edge of Survival until we are strong enough to move on without it. Over time, though I still have days where I resent the effort; I have become thankful for my companion, The Mask .

The Rest of the Art Every Day Month Series of Posts are  Here and have been brought to the public via the support of my patrons. 

Hand Painted Alphabet Rock Collection

Art Every Day Month~Day 27

Digital collage of Busy Bucket
Busy Bucket with Activities for Toddlers Includes Hand-Painted Rocks Alphabet

The activities in The Busy Bucket, modeled after the My Busy Bag trend I saw on Pinterest, welcomes independent exploration for the child, as well as, opportunities for easy interactive activities with an adult.

Although my nephew and his family won’t need to worry about these aspects of using them; the activities I used were created as examples for other survivors. Along with the Creative Learning Activities; all of these DIY toys are easy to work on from multiple positions and created with the idea that they can also be used for interactive time with a toddler while the adult adjusts to assorted positions to accommodate physical limitations. The most difficult part is getting the bucket open if you seal it shut completely.

The seat cushion is stored inside of the bucket. I made sure it is washable and it doubles as a small pillow.

The busy bucket also includes a re-purposed Healthy Choice vegetable steamer container with a lid for use as a toddler’s first sewing kit (not shown). [I think my daughter left this container in my cabinet a few years ago…it was also great for so many other things!]

Healthy choice Container easy to re-purpose
This container is easy to re-purpose

The holes in the strainer lid are a perfect size to “sew” patterns with the purple shoe laces I put inside…along with some empty thread spools, and yarn with a plastic child-friendly needle. The needle is stored in a re-purposed blue prescription bottle with a child-proof lid so that she can only use it with adult supervision. There are also a lot of easy and fun ideas for DIY Toddlers’ Sewing Kits Here.

Total Cost to create the busy bucket= <$5 for remnants of acrylic paint, thread, yarn, and water-based gloss gloss to seal the painted rocks.

The hugs from her Mom= Priceless.

The Rest of the Art Every Day Month Series of Posts are  Here and have been brought to the public via the support of my patrons. 

Digital Photo.Local Harvest.Gratitude

Art Every Day Month~Day 26

Digital Photo.Local Harvest.Gratitude
A Season of Gratitude (Digital Photo, still life)

A Time to Be Thankful… for the sacrifices of many others who gave us this day…

And to celebrate Life Every Day as a tribute to that sacrifice.

For THIS, I am thankful.

Feel free to share your gratitude in the comments below.

The Rest of the Art Every Day Month Series of Posts are  Here 

 

Art Every Day Month~Day 25~Edible Art

Evening Primrose plant on cotton fabric
“Organic Moonscape” Evening Primrose Plant on cotton fabric.

This edible Moonscape, in honor of the full moon today,  is made of Fresh Evening Primrose Roots and Leaves and some dried Evening Primrose flowers that I gathered from my garden at the studio.

I selected Evening Primrose as my Wild Plant Ally for 2015. This is a gentle plant with many health benefits relevant to my own personal needs. [I am not a physician. Be sure to verify the plant ID and consult a trusted physician prior to adding it to your own diet or treatment plan.]

My current mood and condition warranted a late fall harvest of first year EPR growing in my garden. The fresh clean root has  a mild pleasant flavor and produces a somewhat calming effect with a bit of relief from hormonal mood swings.  Edible as a fresh vegetable; I will be putting it in some breakfast fritters. I am also setting some of the root aside as a tincture for later use this Winter when the ground will be too frozen to obtain the fresh roots.

The seeds I harvested earlier this fall are also said to be beneficial to treatment of my “mild hormonal depression” …for lack of a better description. I will be crushing them to release the valuable oils and then adding them to my lambsquarters bread as is done with poppy seeds in poppy seed muffins.

OUTCOME: TBD

RELATED LINKS:

Another Evening Primrose Post

Foraging Evening Primrose

Herbs for Health:Benefits of Evening Primrose

The Rest of the Art Every Day Month Series of Posts are  Here and have been brought to the public via the support of my patrons. 

Art Every Day Month~Day 24~Fabric Art

fabric art on white kitchen bucket
Transformation of a plain white kitchen bucket.

Making Art helps us celebrate life, too.

The Activities from Day 22 and the Lady Bug from Day 21 will be inside of this bucket. My Nephew’s daughter entered this world two years ago today under serious and unexpected duress. Terrified, they handled this with so much love and compassion for each other that it became not only a birth miracle but a life lesson for all who encountered them. Happy Birthday to their Beautiful Bundle of Awesomeness today! 

Thankful for our blessings.

The Rest of the Art Every Day Month Series of Posts are  Here and have been brought to the public via the support of my patrons. 

NOTES FROM AEDM 2015 DAY 1

I have decided to participate in Leah Piken Kolidas’ Art Every Day Month Challenge atCreative Every Day during the Month of November. For the first time, as I do this 30 day challenge, I will be posting my progress HERE for arachnoiditis survivors and advocates.

I hope you will join me for this creative journey. If you are an Arachnoiditis Survivor creating any art during the series that you would like to share with The Art For Arachnoiditis Project feel free to do so in the Art For Arachnoiditis Project Facebook page, share links in the comments below, or submit the work for use in YEAR 2 of the Survivors’ Art Exhibit. (Accepting Entries until Feb 15, 2016.) Although the Art By Survivors’ exhibit is open only to the Survivors; other creative minded individuals are invited to share in all of the other places.

SUBSCRIBE to get the quarterly Art For Arachnoiditis Project Newsletter

WATCH VIDEO FROM OUR 2015 SURVIVORS’ ART EXHIBIT HERE

SHOP Awareness Art,Your purchase will benefit the Art For Arachnoiditis Projects at the studio. These fair market prices are not tax-deductible purchases.or Make a tax-deductible contribution via our Fiscal Sponsor,  NYFA [New York Foundation for the Arts] Or by check payable to the New York Foundation for the Arts, Memo: The Art For Arachnoiditis Project mailed to: SheilaLynnK Art Studio, 345 South Main Street, Wellsville, NY 14895.

To submit original art to this catalog to benefit the Art For Arachnoiditis Project Awareness Efforts. Send submissions with your signed Art In-Kind Form to sheilalynnk@yahoo.com subject line: Add My Art

This is the first time I will be doing daily art for The Art For Arachnoiditis Project. If you have never seen these posts before; you can get a better idea of what this is all about by checking out a A Few of my Similar Month-long Projects/Posts/Series from the Past.

My 30.30.30 [30 Days, 30 Pieces/posts, 30 minutes each] activities have previously been posted on my blog and on my facebook page. The most recent one I did in September 2015 is available HERE, April 2015 started HERE: 
 
April 2014 I alternated between painting and drawing HERE andHERE
January 2014 ~ 30 Day Art Journal Project HERE
September 2013 was a daily Mandala Project (which grew and ended up in my 2013 Show, “A Round Now In A Square Time” with artist & friend, Allison Midgley) That project startsHERE
The Show is HERE